Our daughter was diagnosed (I think 2014) aged 8. We knew Evie had some sort of syndrome when she was born in 2006. Initially the geneticists thought it was Cornelia de lange syndrome then she got the diagnosis a few years ago.
1 people with Wiedemann-Steiner Syndrome have taken the SF36 survey. Mean of Wiedemann-Steiner Syndrome is 2220 points (62 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey