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  2. Wiedemann-Steiner Syndrome
  3. Advice
Getting whole exome sequencing done was life changing
by Shannon
Time
by Amanda
Speech, Physical and Occupational Therapy
by rykermisko
as a mom with a wss child, putting on headphones and listening to my favorite music while he has his fits.
by Kim
My daughter, 13 years old, has WSS
by Tiffy
Diet. No artificial food.
by Maria
Terapias
by Yolanda
Finding the Wiedemann Steiner Syndrome Parent Support Group has given me a world of people to lean on
by Shannon
Acceptance
by Amanda
Supportive Doctors and family
by rykermisko
Doing behavioral therapy not justfor my son, but for us (parents) to learn what to do and how to handle it.
by Kim
The Facebook groups for WSS are AMAZING!
by Tiffy
Music and music therapy
by Maria
Lucha
by Yolanda
The parents are the experts on this rare disease, and we are all teaching the professionals new things daily
by Shannon
Facebook community for WSS
by Amanda
WSS support group
by rykermisko
joining WSS facebook page.
by Kim
We will all get through this together
by Tiffy
Finding things that he can manage to do
by Maria
Esperanza
by Yolanda