World map of Wiedemann-Steiner Syndrome


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Wiedemann-Steiner Syndrome stories


OUR DAUGHTER


Our daughter was diagnosed (I think 2014) aged 8. We knew Evie had some sort of syndrome when she was born in 2006. Initially the geneticists thought it was Cornelia de lange syndrome then she got the diagnosis a few years ago. 

Views: 660 Mar 31, 2016, 8:46 AM by Evie

AMANDA'S STORY


Our son Finn (6) was diagnosed with WSS in May 2014.

Views: 636 Mar 31, 2016, 10:12 PM by Amanda

GUS'S STORY: OUR SEARCH FOR ANSWERS


Views: 608 Jan 18, 2018, 11:07 PM by anonymous

TATUM


My son, Tatum was diagnosed in January or February, 2016. He is 3!

Views: 571 Mar 31, 2016, 8:06 AM by ️Marcy Rossi

EMMA'S JOURNEY: FROM THE NICU TO WSS


Views: 372 Jan 17, 2018, 2:48 PM by Shannon

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