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Which advice would you give to someone who has just been diagnosed with X-linked Hypophosphatemia (XLH)?
See some advice from people with experience in X-linked Hypophosphatemia (XLH) to people who have just been diagnosed with X-linked Hypophosphatemia (XLH)
Translated from spanish
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In the case of children, the council is to their parents/guardians/guardians, and this is that must be constant and persevering with the treatment they indicate, is a slow process, but there are major improvements when it is performed correctly.
In adults, the advice is the same, with the difference that the be people more autonomous we can be, or be easier to be consistent with the treatment, or on the contrary leave quickly if we don't have enough motivation. It is also important to not just look the part of metabolic our disease, but they see us with a doctor help us to be best of our limbs, the same with the denture, and not less important, to take care of our food.
In adults, the advice is the same, with the difference that the be people more autonomous we can be, or be easier to be consistent with the treatment, or on the contrary leave quickly if we don't have enough motivation. It is also important to not just look the part of metabolic our disease, but they see us with a doctor help us to be best of our limbs, the same with the denture, and not less important, to take care of our food.
Posted Aug 9, 2017 by Felipe Zúñiga 2650
