7

Living with Adenoid Cystic Carcinoma. How to live with Adenoid Cystic Carcinoma?

Can you be happy living with Adenoid Cystic Carcinoma? What do you have to do to be happy with Adenoid Cystic Carcinoma? Living with Adenoid Cystic Carcinoma can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Adenoid Cystic Carcinoma

Living with Adenoid Cystic Carcinoma

Living with Adenoid Cystic Carcinoma


Adenoid Cystic Carcinoma (ACC) is a rare form of cancer that typically affects the salivary glands, but can also occur in other areas such as the breast, trachea, or lacrimal glands. Living with ACC can be challenging, both physically and emotionally. However, with the right support and management strategies, it is possible to lead a fulfilling life.



Medical Management


It is crucial to work closely with a medical team experienced in treating ACC. They will develop an individualized treatment plan based on the stage and location of the cancer. Treatment options may include surgery, radiation therapy, and chemotherapy. Regular follow-up appointments and imaging tests are essential to monitor the progress of the disease.



Physical Well-being


Managing the physical symptoms of ACC is vital for maintaining a good quality of life. This may involve taking prescribed medications, managing pain, and addressing any side effects of treatment. Engaging in regular exercise, as recommended by your healthcare team, can help improve strength, reduce fatigue, and enhance overall well-being.



Emotional Support


Living with ACC can be emotionally challenging. It is important to seek emotional support from loved ones, friends, or support groups who can provide understanding and empathy. Additionally, consider speaking with a mental health professional who can help you navigate the emotional impact of the disease and develop coping strategies.



Healthy Lifestyle


Adopting a healthy lifestyle can play a significant role in managing ACC. Eating a balanced diet rich in fruits, vegetables, and whole grains can support overall health and boost the immune system. Avoiding tobacco and excessive alcohol consumption is also crucial, as they can worsen the effects of cancer and its treatment.



Self-Care


Practicing self-care is essential when living with ACC. This may involve engaging in activities that bring joy and relaxation, such as hobbies, reading, or spending time in nature. Prioritizing rest and sleep is also important for physical and emotional well-being. Remember to listen to your body and give yourself permission to take breaks when needed.



Support Network


Building a strong support network is invaluable when facing ACC. Surround yourself with loved ones who can provide practical assistance, emotional support, and companionship. Consider joining support groups or online communities where you can connect with others who are going through similar experiences. Sharing your journey with others who understand can provide a sense of belonging and empowerment.



Education and Advocacy


Empower yourself by learning about ACC and becoming an advocate for your own health. Stay informed about the latest research, treatment options, and support resources available. By being proactive and knowledgeable, you can actively participate in your treatment decisions and ensure you receive the best possible care.



Living with Adenoid Cystic Carcinoma can be challenging, but with proper medical management, emotional support, a healthy lifestyle, and self-care, it is possible to lead a fulfilling life.


Diseasemaps
4 answers
Adenoid Cystic Carcinoma is a rare cancer that follows the nerves and is a glandular cancer. It is known to metastis. As with any cancer, a positive attitude will get you far in healing and living a full life.

Posted May 19, 2017 by Carmenita 2650
Varies from person to person. Quality of life seems to be most affected by long term radiation side effects. I believe one can live a fulfilling and happy life with ACC with the right mindset.

Posted May 21, 2017 by Jen 2310
Yes you can be happy. It is sometimes hard when you know there is a good chance the disease well metastasize. You need to focus on all of the good things in life. I believe that there are good things in everyone's life.

Posted Oct 17, 2017 by Peter 2500

Living with Adenoid Cystic Carcinoma

Adenoid Cystic Carcinoma life expectancy

What is the life expectancy of someone with Adenoid Cystic Carcinoma?

5 answers
Celebrities with Adenoid Cystic Carcinoma

Celebrities with Adenoid Cystic Carcinoma

2 answers
Is Adenoid Cystic Carcinoma hereditary?

Is Adenoid Cystic Carcinoma hereditary?

5 answers
Is Adenoid Cystic Carcinoma contagious?

Is Adenoid Cystic Carcinoma contagious?

5 answers
Natural treatment of Adenoid Cystic Carcinoma

Is there any natural treatment for Adenoid Cystic Carcinoma?

4 answers
ICD9 and ICD10 codes of Adenoid Cystic Carcinoma

ICD10 code of Adenoid Cystic Carcinoma and ICD9 code

5 answers
Adenoid Cystic Carcinoma diet

Adenoid Cystic Carcinoma diet. Is there a diet which improves the quality o...

4 answers
History of Adenoid Cystic Carcinoma

What is the history of Adenoid Cystic Carcinoma?

4 answers

World map of Adenoid Cystic Carcinoma

Find people with Adenoid Cystic Carcinoma through the map. Connect with them and share experiences. Join the Adenoid Cystic Carcinoma community.

Stories of Adenoid Cystic Carcinoma

ADENOID CYSTIC CARCINOMA STORIES
Adenoid Cystic Carcinoma stories
from age 14-27 I dealt with ear, jaw and neck pain, misdiagnosed with chronic ear infections, and tmj. I was diagnosed at age 27 with Adenoid Cystic Carcinoma after an ear drum burst and my ENT did an exploratory surgery. They found a large tumor in ...
Adenoid Cystic Carcinoma stories
Several years back, my dentist noticed a lump on the roof of my mouth. I went to a local ENT doctor to have it checked. He did an exam and eventually only a superficial biopsy of the site (not getting down INTO the lump), and found nothing.  A coup...
Adenoid Cystic Carcinoma stories
Adenoid Cystic Carcinoma stories
I have TN  2 and it is caused by a tumour on the neverve, not a compression by vessel.  Id like to know of us this this tumour causing the problem.  Tumour is an adanoud cystic carcinoma. It lives salivary glands and nerves. It is extremely rare...
Adenoid Cystic Carcinoma stories

Tell your story and help others

Tell my story

Adenoid Cystic Carcinoma forum

ADENOID CYSTIC CARCINOMA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map