Living with Adrenal Cortical Carcinoma (ACC). How to live with Adrenal Cortical Carcinoma (ACC)?

Living with Adrenal Cortical Carcinoma (ACC)

Adrenal Cortical Carcinoma (ACC) is a rare form of cancer that affects the adrenal glands, which are located on top of the kidneys. Living with ACC can be challenging, both physically and emotionally. However, with proper management and support, it is possible to lead a fulfilling life.

Medical Management

ACC requires comprehensive medical management, which typically involves a multidisciplinary approach. It is crucial to work closely with a team of healthcare professionals, including oncologists, endocrinologists, surgeons, and nurses. They will guide you through the treatment options and help develop an individualized plan.

Surgery: Surgery is often the primary treatment for ACC. It involves removing the tumor and, in some cases, the affected adrenal gland. The extent of surgery depends on the stage and spread of the cancer. Recovery from surgery may take time, and it is important to follow post-operative instructions provided by your healthcare team.

Chemotherapy: In advanced cases or when surgery is not possible, chemotherapy may be recommended. Chemotherapy uses drugs to kill cancer cells or slow down their growth. It can be administered orally, intravenously, or directly into the abdomen. Your healthcare team will monitor your response to chemotherapy and manage any side effects.

Radiation Therapy: Radiation therapy may be used to target and destroy cancer cells. It is often employed after surgery or in cases where the tumor cannot be completely removed. Radiation therapy can have side effects, such as fatigue and skin irritation, but these are usually temporary.

Managing Symptoms and Side Effects

ACC and its treatments can cause various symptoms and side effects. It is important to communicate openly with your healthcare team about any discomfort or changes you experience. They can provide strategies and medications to help manage these issues. Some common symptoms and side effects include:

• Fatigue: Cancer and its treatments can cause fatigue. Prioritize rest, engage in gentle exercise, and conserve energy by delegating tasks when possible.


• Pain: ACC may cause pain, which can be managed through medications prescribed by your healthcare team. Alternative therapies like acupuncture or relaxation techniques may also provide relief.


• Nausea and Vomiting: Chemotherapy can cause nausea and vomiting. Medications called antiemetics can help control these symptoms. Eating small, frequent meals and avoiding triggers may also be beneficial.


• Emotional Support: Living with ACC can be emotionally challenging. Seek support from loved ones, join support groups, or consider counseling to help cope with the emotional impact of the disease.

Lifestyle and Self-Care

Adopting a healthy lifestyle and practicing self-care can contribute to your overall well-being while living with ACC:

• Healthy Diet: Focus on a balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Stay hydrated and limit processed foods, sugary drinks, and excessive salt intake.


• Physical Activity: Engage in regular exercise as tolerated and recommended by your healthcare team. Physical activity can help improve energy levels, manage stress, and maintain overall fitness.


• Stress Management: Find stress-reducing activities that work for you, such as meditation, deep breathing exercises, yoga, or engaging in hobbies you enjoy.


• Sleep: Prioritize quality sleep and establish a relaxing bedtime routine. Create a comfortable sleep environment and avoid stimulating activities before bed.


• Regular Check-ups: Attend scheduled medical appointments and follow-up visits to monitor your condition, discuss any concerns, and adjust treatment plans if necessary.

Support Network

Living with ACC can be overwhelming, and having a strong support network is essential. Lean on your family, friends, and loved ones for emotional support. Consider joining support groups or online communities where you can connect with others facing similar challenges. Sharing experiences and knowledge can provide comfort and valuable insights.

Remember: Each person's experience with ACC is unique, and it is important to consult with your healthcare team for personalized advice and guidance. They are your best resource for managing the disease and improving your quality of life.