Hi, I am Alecia. I am 69, widowed, mother, grandmother and retired RN. I have Alpha 1, a genetic COPD/ emphysema, where I received a Z gene from each parent. My new mantra is from "Madagascar" "you got to move it, move it, m...
In 1994 I began to feel breathless whilst working as a community nurse. Climbing stairs became a struggle and then continuous lung infections and colds. Dignosis was made one year later - Z-nul - and I continued working for 9 years. Becoming limited ...
I was finally diagnosed with Ankylosing Spondylitis in January 2009 after what I can only describe as an uphill battle both physically and emotionally. I am a mother of 5 children and had my first child at just 16 yrs of age. I had my ...
In February/March 2015 I had pneumonia, as I do every year. Thanks to the Affordable Care Act, I was able to go to the two week follow up appointment. The doctor thought I had some ongoing problems and ordered some tests in April. The results se...
I am an MZ and everything I read says don't worry just don't drink, don't smoke.... but my initial level was 16.5 micro mols in 2011 when I was first tested. I just got tested again to see what my AAT level is at currently and it is down to 12.75. Sh...
20 people with Alpha 1-antitrypsin deficiency have taken the SF36 survey. Mean of Alpha 1-antitrypsin deficiency is 1481 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
