A Alport Syndrome story

My name is Sarah I'm from East Yorkshire, England. I was diagnosed at the age of 2. I have been under the watch of hospitals my whole life. In 2010 I was told my kidney was failing a year later I was on Pd dialysis. During this time my brother also went into renal failure and was put on hemo. The doctors then started their investigation into whether me and my brother have alports syndrome. (Recently been confirmed as a rare genetic form of the condition) In 2013 I received a transplant.