There are 74 people in the Alport Syndrome map

Alport Syndrome life expectancy

What is the life expectancy of someone with Alport Syndrome?

Is Alport Syndrome contagious?

Is Alport Syndrome contagious?

ICD9 and ICD10 codes of Alport Syndrome

ICD10 code of Alport Syndrome and ICD9 code

Is Alport Syndrome hereditary?

Is Alport Syndrome hereditary?

1 answer

Stories of Alport Syndrome

Alport Syndrome stories
In 2012 our youngest daughter, born in 2010, got hospitalized due to pneumonia. During basic testings they discovered protein and microscopic hematuria in her urine samples, and since they couldn't find any reason to why they sent her for a genetic s...
Alport Syndrome stories
My name is Sarah I'm from East Yorkshire, England. I was diagnosed at the age of 2. I have been under the watch of hospitals my whole life. In 2010 I was told my kidney was failing a year later I was on Pd dialysis. During this time my brother also w...
Alport Syndrome stories
My dad, Lee Spracklen, knew the minute I was born a girl that I had Alport Syndrome.  My dad had it and our family has X linked Alports.  Which meant he gave me his bad X. My dad had issues with his kidneys as a young boy. And had a kidney transpla...
Alport Syndrome stories

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Alport Syndrome forum


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Statistics of Alport Syndrome

5 people with Alport Syndrome have taken the SF36 survey. Mean of Alport Syndrome is 1310 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

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Alport Syndrome