My name is Sarah I'm from East Yorkshire, England. I was diagnosed at the age of 2. I have been under the watch of hospitals my whole life. In 2010 I was told my kidney was failing a year later I was on Pd dialysis. During this time my brother also w...
In 2012 our youngest daughter, born in 2010, got hospitalized due to pneumonia. During basic testings they discovered protein and microscopic hematuria in her urine samples, and since they couldn't find any reason to why they sent her for a genetic s...
My dad, Lee Spracklen, knew the minute I was born a girl that I had Alport Syndrome. My dad had it and our family has X linked Alports. Which meant he gave me his bad X. My dad had issues with his kidneys as a young boy. And had a kidney transpla...
7 people with Alport Syndrome have taken the SF36 survey. Mean of Alport Syndrome is 1482 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
