Support Groups are amazing & a must!
being diagnosed finally after 49 years of symptoms...
Using Potassium Chloride pills, and Diamox seem to help the most at this time
I'm an advocate for multiple Rare Diseases.
high-dose potassium supplements
Being mindful of when I am getting tired. As soon as I begin to get tired I rest.
Finding good Doctors is so important.
working out what my triggers for attacks are
Diet does not appear to make any difference in my times of weakness or good strength. At 57 years old I have a lower normal strength.