Anencephaly is a congenital birth defect. While the word anencephaly means « without a brain », it does not accurately describe a child with such a defect. Children with anencephaly  do have a brain, but it is not fully developed. A baby with anencephaly is admittedly born with little scalp, cranium vault, or brain, but he or she does usually have part of the cerebral trunk. Your baby's facial features will be complete; however, there will be an opening in the skull. The size varies from child to child. If you look into the opening, you will see some brain tissue. Your baby's head can be covered with a cap if you do not want to see this. There may be other problems with your baby's body (folded ears, cleft palate, open spine), but usually your baby's body will develop normally. (Source: http://www.anencephaly.info/pdf/anen-info_2006-USA.pdf )

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ANENCEPHALY

Symptoms

Anencephaly is diagnosed through ultrasound or after birth

Treatments

During your pregnancy, your baby will receive
everything needed through the mother and so grows
well, just like any healthy baby. After birth, however,
vital functions cannot be sustained for long. Though
breathing is often spontaneous, it is not stable
enough.
Many babies with anencephaly live throughout the
pregnancy to birth. Still, some die prematurely while
others die during the delivery. This is called
stillbirth. Those who survive may live a few seconds,
minutes, hours, or even days. While there have been some children that have lived months or years with Anencephaly it is very uncommon. Sadly, the condition is
not correctable or reversible. Anencephaly is always
fatal.

Who can help you


Anencephaly stories


LYSANDER


 Hello my name is Elisia, I am 30 I am an ovarian cancer survivor I have PCOS and I was told without medical he having a child wasn't possible, I was 25 when I went into remission. I had accepted the fact children were not an option. On August 19th,...

Views: 457 Aug 15, 2017, 4:40 PM by Elisia

ANENCEPHALY HOPE


I am an advocate for Anencephaly Awareness and run a group on Facebook, Anencephaly Hope I provide support and care packages for families and specially made hats for babies with Anencephaly. 

Views: 455 Aug 16, 2017, 1:53 AM by Lisa

ANENCEPHALY STRONG


In late February of 2014, I found out I was expecting my second child. On March 21, 2014 I had my first ultrasound. I was 8 weeks pregnant. They told me everything looked good so my next ultrasound wouldn't be until June 13, 2014. That would be my 20...

Views: 432 Aug 15, 2017, 3:01 PM by Kari

ANENCEPHALY


My daughter, Bryli, was diagnosed with Acrania-Anencephaly in utero April 1, 2016. She was born August 10, 2016 and lived a beautiful 35 minutes before peacefully passing away, and returning home to her Heavenly Father. 

Views: 416 Aug 15, 2017, 6:12 PM by Shayla

OUR JOURNEY WITH HEAVENLY - ANENCEPHALY


First ultra sound November 18, 2016 We were 7 weeks and 3 days    December 16, 2016  We were 11 weeks 3 days we had our second ultra sound - during our routine ultra sound we were able to see our baby moving around my tummy so ...

Views: 402 Aug 15, 2017, 5:59 PM by Angelina

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