Hi Tammy,
Just read your story. How scary for you and your family 5 years ago. I also felt the same when i had my type b dissection, I'm fact, I still fear my death as my dissection was only in September, so it's still very raw. My father and brother have also had dissections, my father passed away from complications with the genetic mutation that he, my brother and I also have. Scary times at the moment. Thank you for sharing your story.
Hi Corinne Iam sorry to hear about your brother and father. Having a dissection is a very scary thing to have to live with and the fact its so unpredictable (ticking time bomb i think my specialist called it) :-( my specialist thinks my dissection was caused by pregnancy possibly 10years ago so its possible i had it a while before it was detected.There arent many of us in australia with this condition. Please feel free to stay in contact with me :-) if you need anything iam here for you to chat :-) us survivors have got to stick together as unfortunately alot of people dont understand our condition. Xx