Help us to help more people
| View more
View more
Toggle navigation
Apert Syndrome
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Apert Syndrome
Stories
My daughter
Dec 21, 2015
By:
Joannie
Apert Syndrome
Read with music
Stop
Error
My daughter born in april 2006 with Apert. No diagnostic antenatal. She got 9 surgery since now:
- craniofacial in 2006
- hands in 2007 (x4)
- hands in 2009 (x2)
- hands in 2012
- and ORL in 2012
She has 4 fingers to each hands.
Surgerys next: 2016-2017 hands => 5 fingers
2018 => lefort 3
Know someone who should read this story? Share it
Tell my story
0 comments
Login
or
register
to leave a comment
Can people with Apert Syndrome work? What kind of work can they perfor...
Apert Syndrome diet. Is there a diet which improves the quality of lif...
What are the latest advances in Apert Syndrome?
Is it easy to find a partner and/or maintain relationship when you hav...
Living with Apert Syndrome. How to live with Apert Syndrome?
Is Apert Syndrome hereditary?
What are the best treatments for Apert Syndrome?
How do I know if I have Apert Syndrome?