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What is the prevalence of Arnold Chiari?

How many people does Arnold Chiari affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Arnold Chiari

The prevalence of Arnold Chiari is estimated to be around 1 in 1,000 individuals in the general population. This condition, also known as Chiari malformation, is characterized by structural defects in the base of the skull and cerebellum, which can lead to various neurological symptoms. It is more commonly observed in females than males. While some individuals with Chiari malformation may remain asymptomatic, others may experience headaches, neck pain, balance problems, and other neurological issues. Early diagnosis and appropriate management are crucial for improving the quality of life for affected individuals.



Arnold Chiari malformation is a relatively rare neurological condition characterized by structural defects in the base of the skull and the cerebellum. It is named after the Austrian pathologist Hans Chiari, who first described the condition in the late 19th century. The malformation involves the displacement of the cerebellar tonsils through the opening at the base of the skull, causing compression and disruption of normal brain function.


While precise prevalence rates are challenging to determine due to variations in diagnostic criteria and the asymptomatic nature of some cases, it is estimated that Arnold Chiari malformation affects approximately 1 in every 1,000 to 2,500 individuals. The condition is more commonly diagnosed in females than males, and it is often present from birth, although symptoms may not manifest until later in life. Arnold Chiari malformation can be associated with a range of symptoms, including headaches, neck pain, balance problems, and neurological deficits.


Early detection and appropriate management are crucial in minimizing potential complications and improving quality of life for individuals with Arnold Chiari malformation.


Diseasemaps
8 answers
Not too sure of the overall stats

Posted Jul 23, 2017 by Erena 2000
1 in 1000 are affected by this. Of all varying degrees

Posted Aug 30, 2017 by Michelle 2000
currently is is about 1/1000 people

Posted May 27, 2018 by xyzmike1 3050
the prevalence is higher in children and young adults. it affects 1/1000 of the population. it affects woman more than men

Posted Nov 29, 2019 by TRIPLE-1 CHIARI 2500
Translated from spanish Improve translation
It is unknown the prevalence. Affects more to the adult people.

Posted Aug 30, 2017 by Candelaria 6560
Translated from spanish Improve translation
During the NINETEENTH century and early TWENTIETH century, the prevalence of the disease is estimated at 1:1000 (one in one thousand live births). However, the use of diagnostic imaging has shown that Chiari malformations are much more common.6 The diagnosis is even more difficult by the fact that the majority of infants born with this disease do not manifest symptoms until adolescence, adulthood or old age, if they ever show any.

The Chiari are more frequent in women than in men, and the type II is more prevalent in certain ethnic groups, such as afro-celtic.6

Posted Oct 11, 2017 by Lynda Estrada 6835
Translated from spanish Improve translation
It is not rigorously studied, those affected are a small part of the world's population, that's why today we must fight for our illness to be investigated and integrated.

Posted Nov 2, 2017 by Pochi 2050

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ARNOLD CHIARI STORIES
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Hello! I have Arnold Chiari type 1 and Hydrocephalus(but the new dr. says I only need to have just the internal shunt as of right now),as well as POTS,Kyphosis,vertical nystagmas and a Vit. E and Vit. D deficiency. I was diagnosed in 2009 at age 34 w...
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MY NAME IS JENNIFER. I'M 39 YEARS OLD AND AM FINALLY IN LOVE AND FEEL LIKE I FOUND SOMEONE I WANT TO SPEND MY LIFE WITH. THE ONLY PROBLEM IS I HAVE CHIARI. I ALSO RECENTLY FOUND I MOST LIKELY HAVE EDS, POTS, MCAS, AND IC. THESE ARE A LOT OF ABBREVIAT...
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Suffered with extreme stabbing pains, from lau_g_hing, couching and straining - pains that almost knocked me down.  Lips became numb, throat also became numb and my vision in my right eye was failing.  Body aches and pains and shortage of breathe ...
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Diagnosed in August 2011 surgery October 20th 2011 graguwted highschool June 2015 started college August 2015   LIFE CAN BE NORMAL AFTER SURGERY!!!
Arnold Chiari stories
I started getting extreme headaches when I was in the 9th grade. Of course back then they didn't have the technology like they have now, so on medications was my only support from the doctors.  As I got older those headaches got more worse and the m...

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