Living with Arteriovenous Malformation AVM. How to live with Arteriovenous Malformation AVM?
Can you be happy living with Arteriovenous Malformation AVM? What do you have to do to be happy with Arteriovenous Malformation AVM? Living with Arteriovenous Malformation AVM can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Arteriovenous Malformation AVM
Living with Arteriovenous Malformation (AVM)
Arteriovenous Malformation (AVM) is a condition characterized by abnormal connections between arteries and veins in the body. These tangled blood vessels can occur in various parts of the body, including the brain, spinal cord, and other organs. Living with AVM can present unique challenges, but with proper management and support, individuals can lead fulfilling lives.
1. Seek Medical Guidance
If you have been diagnosed with AVM, it is crucial to consult with a healthcare professional who specializes in vascular disorders. They can provide you with accurate information about your specific condition, answer your questions, and guide you through the treatment options available.
2. Understand Your Condition
Educate yourself about AVM to better understand its symptoms, potential complications, and treatment options. Knowledge empowers you to make informed decisions about your health and actively participate in your care.
3. Follow Treatment Plans
Depending on the location and severity of your AVM, treatment options may include medication, embolization, radiosurgery, or surgery. It is essential to follow your healthcare provider's recommended treatment plan and attend all scheduled appointments to monitor your condition.
4. Manage Symptoms
AVM symptoms can vary widely, ranging from mild to severe. Common symptoms include headaches, seizures, weakness, numbness, and problems with coordination. Work closely with your healthcare team to develop strategies to manage and alleviate these symptoms, which may involve medication, physical therapy, or other interventions.
5. Adopt a Healthy Lifestyle
Living a healthy lifestyle can positively impact your overall well-being. Maintain a balanced diet, engage in regular exercise as recommended by your healthcare provider, and get sufficient rest. Avoid smoking and excessive alcohol consumption, as these can worsen the effects of AVM.
6. Build a Support Network
Living with AVM can be emotionally challenging. Surround yourself with a supportive network of family, friends, and healthcare professionals who can provide encouragement, understanding, and assistance when needed. Consider joining support groups or online communities where you can connect with others facing similar challenges.
7. Stay Positive and Manage Stress
Maintaining a positive mindset and effectively managing stress can improve your overall well-being. Engage in activities that bring you joy and relaxation, such as hobbies, meditation, or spending time in nature. Seek professional help if you are struggling with anxiety or depression.
8. Regular Check-ups and Monitoring
Even after treatment, regular check-ups and monitoring are essential to ensure the stability of your AVM. Follow-up appointments with your healthcare provider will help detect any changes or potential complications early on, allowing for timely intervention.
Conclusion
Living with Arteriovenous Malformation (AVM) requires proactive management, support, and a positive mindset. By seeking medical guidance, understanding your condition, following treatment plans, managing symptoms, adopting a healthy lifestyle, building a support network, and staying positive, you can navigate the challenges associated with AVM and lead a fulfilling life.
Posted Sep 13, 2017 by Jill 2000
Posted Nov 2, 2017 by Kelly 1200
1. Remain positive
2. Look at the bright side (no matter how bad off you are, someone is always worse off.
3. HELP OTHERS- you’ll be surprised how good it can make you feel to assist others. Everyone is fighting their own battle but we CAN and SHOULD help each other out. Join support groups. Share your story. Reach out to others.
4. Listen to your body- relax when you’re tired. Get out when you feel up to it. Do as much as you can.
5. Try alternative treatments rather than a bunch of medicines. Be open to things like acupuncture, massage, body work, reiki, PRAYER. (Note: this doesn’t mean not to take your prescribed meds... WHEN IN DOUBT, talk to your DOCTORS)
6. Do your own research. Take an active role in your treatment. Know what your options are and research the various options before making decisions. Talk with your family and let them have a say in what you choose, when possible. Own your disease. Come prepared to every doctor’s appointment with QUESTIONS. Ask them all. (Note: I use my smart phone to jot down questions for each specialist. I use NOTES. I insert photos and links to websites that talk about my questions/issues. I don’t leave until my doctor has addressed them all.
7. ** Most important **
BE PATIENT WITH YOURSELF
LISTEN TO YOUR BODY
REALIZE THIS IS A MARATHON, Not a Sprint
Good luck on your personal journey. Today you may be a newly diagnosed AVM sufferer, but someday you’ll be a SURVIVOR.
Posted Nov 3, 2017 by Rhonda 2150
Posted Jul 5, 2020 by Mary 2500
Posted Nov 3, 2022 by Heather 5020
