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What is the prevalence of Arteriovenous Malformation AVM?
How many people does Arteriovenous Malformation AVM affect? Does it have the same prevalence in men and women? And in the different countries?
All Ican add to this question is that I have been told they are very rare.
Posted Sep 13, 2017 by Jill 2000
AVM’s occur in less than 2% of the world population. Even fewer of those afflicted will have a rupture.
AVM’s can happen in many areas of the body. The most serious are located in the brain and heart.
AVM’s can happen in many areas of the body. The most serious are located in the brain and heart.
Posted Nov 3, 2017 by Rhonda 2150
My own presentation is even rarer, first haemorrhage at 13 months old, mine was sited directly behind my eye, and comprised a tangle of blood vessels, as the circulation was never "normal" a massive growth developed behind my eye covering the entire Orbit. My Photos and scans are published both in book form and on the internet. I have survived surgery but still have two AVM's located in my brain that are deemed inoperable.Because of the rarity I have endured a range of reactions ranging from rudeness and disbelief, to fascination from the medical profession.
Posted Jul 5, 2020 by Mary 2500
AVM's fortunately are very rare but the Butterfly Charity UK is dedicated to AVM sufferers and their familes. Well worth checking out
Posted Nov 3, 2022 by Heather 5020
