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Bardet-Biedl Syndrome stories
Hi my name is Ryan, im 14 years old and have BBS1. My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR. I got my genetic diagnoisis of BBS about 2 years ago. I have night blindness and have n...
Views: 860 Jan 26, 2016, 4:47 PM by Ryan Forsblade
Have a 20 year old son with the syndrome. He is BBS 10, no health issues, mild obesity and his vision is almost all gone.
Views: 713 Dec 30, 2015, 11:57 AM by Ingrid
Please register your BBS loved one in CRIBBS!
Bbs-registry@marshfieldclinic.org
We have a Center of Excellence for Treatment of BBS, Located at the Marshfield Clinic, contact the director, Dr. Bob Haws,
Haws.robert@marshfieldclinic.org for ...
Views: 661 Dec 30, 2015, 3:32 PM by Mary
Our oldest son has Bardet-Biedl Syndrome (BBS). We are setting up a family foundation in the Netherlands for BBS. Contact us: bardetbiedlcontact@gmail.com
Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could sho...
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