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How do I know if I have Biliary Atresia?

What signs or symptoms may make you suspect you may have Biliary Atresia. People who have experience in Biliary Atresia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Biliary Atresia?

Biliary Atresia:


Biliary atresia is a rare liver disease that affects infants. It occurs when the bile ducts, which carry bile from the liver to the gallbladder and small intestine, become blocked or damaged. This blockage prevents the flow of bile, leading to liver damage and other complications.


Symptoms:


Identifying the signs and symptoms of biliary atresia is crucial for early diagnosis and treatment. While the symptoms may vary from child to child, some common indicators include:



  • Jaundice (yellowing of the skin and eyes)

  • Pale stools

  • Dark urine

  • Enlarged liver

  • Slow weight gain or growth

  • Irritability or fussiness

  • Easy bruising or bleeding


If you notice any of these symptoms in your infant, it is important to consult a healthcare professional for a proper evaluation.


Diagnosis:


Diagnosing biliary atresia involves several steps. Initially, the doctor will perform a physical examination and review the infant's medical history. Blood tests may be conducted to assess liver function and check for any signs of liver damage.


The next step typically involves imaging tests, such as an abdominal ultrasound or a hepatobiliary iminodiacetic acid (HIDA) scan. These tests help visualize the bile ducts and determine if there are any obstructions.


Liver biopsy is often the definitive diagnostic procedure for biliary atresia. It involves taking a small sample of liver tissue to examine it under a microscope. This can help confirm the presence of biliary atresia and assess the extent of liver damage.


Treatment:


If biliary atresia is diagnosed, prompt treatment is crucial. The primary treatment option is a surgical procedure called the Kasai procedure or hepatoportoenterostomy. During this operation, the damaged bile ducts are removed, and a section of the small intestine is connected directly to the liver to allow bile drainage.


However, in some cases, the Kasai procedure may not be successful, or the disease may progress despite surgery. In such situations, a liver transplant may be necessary.


Conclusion:


Biliary atresia is a serious condition that requires early detection and intervention. If you suspect your infant may have biliary atresia based on the symptoms mentioned, it is crucial to consult a healthcare professional for a proper diagnosis and appropriate treatment.


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BILIARY ATRESIA STORIES
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My name is Zach Branson. I was born to Kelly Jeanine Flowers and Todd Branson on January 2, 1987 in Grand Junction, CO. Within 1-2 weeks of my birth, I was diagnosed (in Denver) with biliary atresia. Biliary Atresia is a blockage in the tubes (duct...
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Born in South Korea with Biliary Atresia.  Kasai Procedure at 6 weeks old, now 5 years old.  Have been living in the US since age 3.  Currently on transplant list at Children's Hospital, Pittsburgh.
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my son leon was born September 2013 at 2 months old he was diagnosed with biliary atresia he had a kasia procedure that same month. A few months after it started to fail which resulted in having a liver transplant late 2014. He was in and out of hosp...
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Went in for a normal ultrasound at 21 weeks pregnant with Aubree, at the Army hospital on post, to find out if we were having a boy or a girl. They sent us to The Children's Hospital in Colorado Springs (where we lived at the time) because there was ...
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Our Girl was diagnosed before her second month, she have her KASAI on Nov 2010 and did't work we received a gift of life on 3-11 and because of complications she was listed again and received a second transplant one week after. We can help families...

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