Dx Sept 2005
Sandostatin lar
Sandostatin LAR has helped with my syndrome. I also believe that it is helping to keep my disease stable.
Primary Appendix with mets to both ovaries & liver
Octriotide rescue shots
My husband is my caregiver.
Sandostation for 11 years changed to Lanriotide in Feb 2017
Pain meds and heating pads
Be Your Own Advocate!