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Which advice would you give to someone who has just been diagnosed with Carcinoid Syndrome?
See some advice from people with experience in Carcinoid Syndrome to people who have just been diagnosed with Carcinoid Syndrome
The first thing you do is find a good NET Specialist. One that YOU are comfortable with and will listen to you. If they do not let you talk - then they are not a Doctor you want. You need to be able communicate with your doctor. You need to feel that they are the person that can help you manage your disease.
I wish that I knew what I know now back when I was first diagnosed. I would have dropped my doctor back then and found myself a Specialist. I would have done more research on my own.
THE OTHER THING I CAN STRESS ENOUGH IS - BECOME YOUR OWN ADVOCATE! Do your research, know what you want - hear what your Specialist says - and make the decision that you are most comfortable for YOUR situation. DO NOT LET FACEBOOK CHAT GROUPS FOR THIS DISEASE TRY TO SWAY YOU TO A SPECIFIC DOCTOR OR GROUP OF DOCTORS - ONLY YOU CAN CHOOSE THE DOCTOR THAT YOU WANT TAKING CARE OF YOU.
I wish that I knew what I know now back when I was first diagnosed. I would have dropped my doctor back then and found myself a Specialist. I would have done more research on my own.
THE OTHER THING I CAN STRESS ENOUGH IS - BECOME YOUR OWN ADVOCATE! Do your research, know what you want - hear what your Specialist says - and make the decision that you are most comfortable for YOUR situation. DO NOT LET FACEBOOK CHAT GROUPS FOR THIS DISEASE TRY TO SWAY YOU TO A SPECIFIC DOCTOR OR GROUP OF DOCTORS - ONLY YOU CAN CHOOSE THE DOCTOR THAT YOU WANT TAKING CARE OF YOU.
Posted Sep 14, 2017 by Vickie 2000
