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  2. Carney Complex
  3. Advice
Being well informed and able to communicate with my Drs. I've had to become my own advocate.
by Jennifer
being under supervision of endocrinologist
by Denis
Researching. Knowledge is power.
by Angela
Open Heart operation 1 - 03/2011
by Mette Johansen
Support of family, especially my wife.
by Nathan
25 years without tumours
by Jo
Joining the Carney Complex Community(English) group on Facebook
by Angela
Strong pain relief such as longtec an gabapentin this past 10 months have helped me.
by Karen
Impromptu open heart surgery led me to this diagnosis
by Faith
Pituitary Surgery
by HAC
Never losing hope (I really don't know how I do it)
by Jennifer
healthy eating ( organic food and lots of vegetables )
by Denis
Carney Support Group (English) on Facebook.
by Angela
Open Heart operation 2 - 06/2014
by Mette Johansen
My cats.
by Nathan
Understanding nurses
by Jo
Researching - Knowledge is Power.
by Angela
Listening to music to distract myself from the pains.
by Karen
My kids. I hope they don’t have this condition
by Faith
Open heart surgery
by HAC
Accepting that it is part of me and life still can be good if you are willing to change your perspective on things.
by Jennifer
trying to stay positive
by Denis
Healthy lifestyle
by Angela
Open Heart operation 3 - 07/2018
by Mette Johansen
Support from Dr. Stratakis and his amazing team at NIH.
by Nathan
Ultimately dying
by Jo
Support of friends and family, Healthy Lifestyle, Mindfulness and my dogs
by Angela
Wearing non wired braletts with soft touch cotton all over has helped decrease pains.
by Karen
Tom. He keeps me together
by Faith
Staying busy
by HAC