4

How is Carney Complex diagnosed?

See how Carney Complex is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Carney Complex

Carney Complex diagnosis
3 answers
Most patients are diagnosed by genetic testing.
Some patients are diagnosed by meeting criteria on the NIH Diagnostic Criteria for CNC table with histologic confirmation.

Posted May 27, 2019 by Angela 2510
By taking a blood test.

Posted Aug 6, 2019 by Donna 1100
Carney Complex (CNC) still is a disease not well known of by medical professionals.
Very often it's the patient that suspects they might have CNC and will approach their GP.

If you want to know about clinical diagnostic criteria for CNC go to https://www.carneycomplex.org

Working together with your doctor(s) is key as only they have the tools and expertise.

Posted Mar 10, 2021 by Jennifer 620

Carney Complex diagnosis

Carney Complex life expectancy

What is the life expectancy of someone with Carney Complex?

7 answers
Celebrities with Carney Complex

Celebrities with Carney Complex

4 answers
Is Carney Complex hereditary?

Is Carney Complex hereditary?

6 answers
Is Carney Complex contagious?

Is Carney Complex contagious?

6 answers
ICD9 and ICD10 codes of Carney Complex

ICD10 code of Carney Complex and ICD9 code

3 answers
Natural treatment of Carney Complex

Is there any natural treatment for Carney Complex?

4 answers
Living with Carney Complex

Living with Carney Complex. How to live with Carney Complex?

2 answers
Carney Complex diet

Carney Complex diet. Is there a diet which improves the quality of life of ...

4 answers

World map of Carney Complex

Find people with Carney Complex through the map. Connect with them and share experiences. Join the Carney Complex community.

Stories of Carney Complex

CARNEY COMPLEX STORIES
Carney Complex stories
I am writing in behalf of my daughter, 9 years at this time, who was diagnosed with Carney Complex.  At this age she has probable adrenal tumors because of her high cortisol.  She also has two small myxomas on her face.  She has lentignes on the w...
Carney Complex stories
I took Carney Complex at the age of 16, in 1995. I found out through my first serious boyfriend as felt lumps which were cysts in my breasts unknown to me. At that age breast cancer was unspoken and I being very young was unknown too breast cancer no...
Carney Complex stories
I have many freckles Severe headaches when exercising started 2017. Days play tennis. Headaches worsened until I couldn’t finish matches. Eventually Brain MRI revealed large pituitary tumor 3cmx4cm. Tumor was an adenoma prolactinoma. Cabergolin...

Tell your story and help others

Tell my story

Carney Complex forum

CARNEY COMPLEX FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map