Carney Complex affects 1 patient in 10 million people. There are currently only approx 750 diagnosed cases in the world. 70% of these have an affected parent.
I am writing in behalf of my daughter, 9 years at this time, who was diagnosed with Carney Complex. At this age she has probable adrenal tumors because of her high cortisol. She also has two small myxomas on her face. She has lentignes on the w...
I took Carney Complex at the age of 16, in 1995. I found out through my first serious boyfriend as felt lumps which were cysts in my breasts unknown to me. At that age breast cancer was unspoken and I being very young was unknown too breast cancer no...
I have many freckles Severe headaches when exercising started 2017. Days play tennis. Headaches worsened until I couldn’t finish matches. Eventually Brain MRI revealed large pituitary tumor 3cmx4cm. Tumor was an adenoma prolactinoma. Cabergolin...