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Can people with Carney Complex work? What kind of work can they perform?

See how people with experience in Carney Complex give their opinion about whether people with Carney Complex can work and what kind of jobs are more appropriated for people with Carney Complex

Carney Complex jobs
2 answers
Having CNC doesn’t stop you being able to have a career.

Posted May 27, 2019 by Angela 2510
Carney Complex (CC) affects each and everyone of us differently - even amongst the same family sharing the same genetic mutation.

I hope this example helps you understand what I mean.

In my immediate family my mom, my brother and I have CC. It's was unknowingly passed on to us children by our mom. We all share the same mutation but CC has affected all of us differently.

Mom's had:
- cyclical Cushing's Disease (starting from an early age and still has phases where she gains/ loses weight)
- a tumor in her ear (age 22)
- two cardiac myxomas (at 45 and 49)
- papillary thyroid cancer (55)

I've had:
- cyclical Cushing's (starting early on with unexplained weight gain)
- a liver tumor (age 9)
- fibrolamellar cancer (rare liver cancer at age 13)
- full blown Cushing's Disease which was 'cured' by removing both adrenals and giving me Addison's Disease (19)
- Pituitary tumours (19)
- papillary thyroid cancer (26)
- and my latest have been 3 cardiac myxomas (28, 30 and 34)

My brother:
- large-cell calcifying Sertoli cell tumors (in his teens)
- pituitary tumour (26)

My mom was able to finish schooling and worked in a research lab until she had a stroke from her second cardiac myxoma. Since then she's been on disablity.
My brother is able to work and lives a normal life.

I on the otherhand have had more trouble with getting an education and working because of subsequent complications from certain surgeries. Want to read about me check out my blog:
https://itspartofme.carney-complex.org/

So, the answer is: Depending on how Carney Complex expresses itself in you and if you have to deal with any subsequent complications you can work. You can work as anything you want to.

Posted Mar 10, 2021 by Jennifer 620

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CARNEY COMPLEX STORIES
Carney Complex stories
I am writing in behalf of my daughter, 9 years at this time, who was diagnosed with Carney Complex.  At this age she has probable adrenal tumors because of her high cortisol.  She also has two small myxomas on her face.  She has lentignes on the w...
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I took Carney Complex at the age of 16, in 1995. I found out through my first serious boyfriend as felt lumps which were cysts in my breasts unknown to me. At that age breast cancer was unspoken and I being very young was unknown too breast cancer no...
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I have many freckles Severe headaches when exercising started 2017. Days play tennis. Headaches worsened until I couldn’t finish matches. Eventually Brain MRI revealed large pituitary tumor 3cmx4cm. Tumor was an adenoma prolactinoma. Cabergolin...

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