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Cavernous Malformation stories


CAVERNOUS MALFORMATION


In October 2014, I began having unsual symptoms out of the blue like extreme fatigue, headaches, vision problems, and jamais vu. My doctor sent me to get a CT followed by an MRI. It was found that I had a brain bleed coming from a Cavernous Malformat...

Views: 375 May 18, 2017, 3:17 PM by Canuck36

35 WEEKS PREGNANT CCM BLEED IN BRAIN STEM


I was 35 weeks pregnant and admitted to the birth unit with a headache.  I was given iv fluid and had some bloods taken.  Over the next 48 hours I started to vomit constantly.  Developed double vision.  Lost all pain sensation or hot/cold sensati...

Views: 337 Jun 14, 2017, 8:33 AM by Emma

JOANNA'S STORY


Had a seizure for the first and only time this past June then was diagnosed with ccm 2 exon 2-10 deletion....multiple in brain ....one in spine ....liver ...adrenal gland and breast

Views: 323 May 18, 2017, 4:53 PM by Joanna

BRAIN STEM CAV


In June 2013 I was just coming off the high of seeing my 2nd son graduate high school.  Life was taking its normal coarse at 40 when I fell hard during a volleyball game with the youth group at church. I landed on my shoulder and   over the...

Views: 320 May 19, 2017, 6:00 PM by Shawna

SURRENDERING ISN'T NECESSARILY A BAD THING!


My story can be found here:https://makeeverydayspecialblog.wordpress.com/

Views: 307 May 18, 2017, 4:18 PM by Jana

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