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Central Core Disease stories
As a small child I became aware that I was not able to run like all my friends or climb trees and do all the other things all other boys did. I have two older brothers and a twin sister they are like me but gowing up this was never spoken about, in o...
Views: 418 May 30, 2017, 7:21 AM by Paul
Desde criança sofri muito com a minha doença, pois não sabia o que realmente eu tinha. Não entendia o porque que eu não conseguia correr, pular, agachar e levantar normalmente como as demais crianças. Os anos foram se passando e eu sem entender...
My son was born floppy and muscle biopsies confirmed congenital MD. Recent blood genetics result now say RYR1 Mutation and Central core disease is back on the table as it was in the beginning.
I believed until a week ago that Chris disease and m...
Views: 297 Aug 21, 2017, 3:16 PM by Karen
Views: 244 Dec 2, 2017, 7:53 PM by Rhianwen
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