I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool. I had a Bilateral Achilles Tendon Release Op at the age of 2yrs +. at Alderhey Children's Hospital and had annual reviews...
I dont have CMT but both my husband and 6 year old son do. Living and learning from the daily battles with both of them has really taught me a lot about how this disease affects and differs from each person. To help them I am an active pa...
I was diagnosed late in life and only had to stop working just over a year before i was 65 . I think what helps me that this cmt2 is so slow advancing in my case. But not knowing anyone else with cmt gives me a feeling of isolation although i have a ...