never ending condition without cure
Have suffered for over 20 years with this condition that has never been conveyed to me by the medical services. There is so much unknown about this condition that, particularly in the early days of my disease, the surgery i had was like a hit and hope effort to treat the problem. The presence is building online, facebook for eg of sufferers of this dire and dreadful malaise. You really get an idea of how confused and helpless the sufferers are and have been for decades.
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