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Which advice would you give to someone who has just been diagnosed with Crohn's disease?

See some advice from people with experience in Crohn's disease to people who have just been diagnosed with Crohn's disease

Crohn's disease advice


Congratulations on taking the first step towards understanding and managing your Crohn's disease! Being diagnosed with a chronic condition like Crohn's can be overwhelming, but with the right knowledge, support, and lifestyle adjustments, you can lead a fulfilling life while effectively managing your symptoms. Here are some important pieces of advice to help you navigate this new chapter:




  1. Education is key: Take the time to learn about Crohn's disease, its causes, symptoms, and treatment options. Understanding your condition will empower you to make informed decisions about your health and treatment plan. Consult reputable sources such as medical websites, books, and support groups to gather accurate information.


  2. Build a healthcare team: Assemble a team of healthcare professionals who specialize in Crohn's disease. This may include a gastroenterologist, a registered dietitian, and a mental health professional. Regularly communicate with your healthcare team, ask questions, and actively participate in your treatment plan.


  3. Adopt a healthy lifestyle: While Crohn's disease is not caused by lifestyle choices, maintaining a healthy lifestyle can help manage symptoms and improve overall well-being. Focus on a balanced diet, regular exercise, adequate sleep, and stress management techniques such as meditation or yoga. Avoid smoking and excessive alcohol consumption, as they can worsen symptoms.


  4. Follow a personalized diet: Crohn's disease affects everyone differently, so it's important to identify which foods trigger your symptoms. Consider working with a registered dietitian experienced in inflammatory bowel disease to develop a personalized diet plan. They can help you navigate through potential trigger foods and ensure you receive proper nutrition.


  5. Take medications as prescribed: Your healthcare provider may prescribe medications to manage your Crohn's disease. It's crucial to take them as directed, even if you're feeling well. Skipping or altering doses can lead to flare-ups and complications. Regularly discuss any concerns or side effects with your healthcare team.


  6. Manage stress: Stress can exacerbate Crohn's symptoms, so finding effective stress management techniques is essential. Explore activities that help you relax and unwind, such as reading, listening to music, practicing mindfulness, or engaging in hobbies. Consider joining support groups or seeking therapy to cope with the emotional challenges that may arise.


  7. Communicate openly: Share your diagnosis with your loved ones, close friends, and employers. Open communication will help them understand your condition and provide necessary support. Inform your employer about any accommodations you may require due to your condition, as Crohn's disease can sometimes affect work productivity.


  8. Stay connected with the Crohn's community: Connecting with others who have Crohn's disease can provide invaluable support and understanding. Join local or online support groups, participate in forums, and attend educational events. Sharing experiences and learning from others can help you feel less alone and provide practical tips for managing your condition.


  9. Monitor your symptoms: Keep track of your symptoms, triggers, and any changes in your condition. Maintaining a symptom diary can help you identify patterns and provide valuable information to your healthcare team during appointments. Regular check-ins with your healthcare provider are crucial to assess your progress and make any necessary adjustments to your treatment plan.


  10. Stay positive and seek help: Living with Crohn's disease can be challenging, both physically and emotionally. It's important to maintain a positive mindset and seek help when needed. Reach out to your healthcare team or mental health professionals if you experience anxiety, depression, or any other mental health concerns. Remember, you are not alone in this journey.



Remember, being diagnosed with Crohn's disease does not define you. With the right support, self-care, and management strategies, you can lead a fulfilling life. Embrace the journey, stay informed, and never hesitate to reach out for help when needed. You have the strength to overcome the challenges that lie ahead.


Diseasemaps
18 answers
Do ur own research and be informed cause not all doctors will have tbe right answers

Posted May 12, 2017 by Rori 1500
Read as much as you can about it and ask lots of questions.

Posted Aug 29, 2017 by Yvette 1350
Immediately contact some one who has more understanding than your doctor. I recommend Dr Albert Snow in the USA who completely changed my life. Greg Williams in the UK is also a good choice.

Posted Aug 31, 2017 by cyrus 2270
Do your research. Get intouch with support groups. Try meds. If that doesn't work, there is surgery. It will get better.

Posted Oct 19, 2017 by Tfochtman 2000
Translated from spanish Improve translation
Not to worry beyond what is necessary, never leave your checks or medications, and that you enjoy your life.

Posted Feb 22, 2017 by Maria Mena 1020
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Is that when one is newly diagnosed, the world is coming next, you wonder what will be of your world and your life from now on. My advice to contact other patients and engage in a friendship with them. Help give us strength to each other and are aware of other success stories that you will see that s can be to live with this condition.

Posted Mar 2, 2017 by Fatima Baptista 1000
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You don't see it as a disease that limited her life, is only a new health condition, which can be remission and that you are not alone!

Posted Mar 4, 2017 by Nakay 1000
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Have a lot of patience, realize that since you know what you need, you can start to live a better life.
Comment with your acquaintances who now need to live in function of a new and more attractive way of life.
Live one day at a time, calmly, without trouble for the future

Posted Mar 4, 2017 by Luis 1480
Translated from portuguese Improve translation
The advice I would give was to stay calm, and to start and carry out medical treatment just right... to Do all examinations, take medications according to medical advice received.

Posted May 4, 2017 by ALEXANDRE K TAVARES 1100
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Stop, take a deep breath and remember: it is Not the end of the world. There are so many other worse conditions and more difficult to cope with. In the beginning it is always a shock, but don't let the disease dictate the rules of your life.

Posted May 5, 2017 by Marcel Correa 1000
Translated from portuguese Improve translation
Do not be sad when you say that there is no cure. There is treatment and you can live a life relatively quiet. Do not leave the faith aside, since it is an important ally. Learn how to deal with the disease is not easy but it is possible.

Posted May 5, 2017 by Jivaneide 1120
Translated from spanish Improve translation
I would have liked that, I reassure him and I will support them

Posted Aug 15, 2017 by Angelinebadal 2156
Translated from portuguese Improve translation
Keep calm, because the stress attacks the disease

Posted Sep 8, 2017 by Suzely Akemi 1000
Translated from spanish Improve translation
That you follow up with the conventional therapy to but try other at the same time, to consider and exprimente until you find the solution

Posted Sep 9, 2017 by Jmes 910
Translated from portuguese Improve translation
Get in contact with other people who suffer from IBD

Posted Sep 12, 2017 by Paloma 1000
Translated from spanish Improve translation
The first thing PATIENCE. It is a disease of long distance. So you need to understand what you have and then put order in life.

Posted Sep 17, 2017 by Juan González 3251
Translated from spanish Improve translation
Living the moment not to think further , and that they care and have your treatment

Posted Oct 14, 2017 by Irene 3550

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