Which advice would you give to someone who has just been diagnosed with Cyclic vomiting syndrome?

Get online and study cyclic vomiting syndrome. Visit www.cvsnetwork.co.uk to find some great advice and support.
Also visit the CVSA-UK and CVSA-US websites.

Most Doctors don't even know what Cyclic Vomiting is! The ones that do will still try to put you in a box. Judge your problems by others. So...do not let that discourage you too bad. It will, but you keep fighting for diagnosis and proper treatment! GO TO THE HOSPITAL WHEN YOU HAVE BEEN SICK FOR A PROLONGED PERIOD OF TIME !!! No matter what they say or how they treat you. Get fluids! Learn your body. Record reactions to food..work...play...stress...happiness...hot...cold..learn YOU. Don't take any crap from anyone. My doctor is one of the best but I will argue with him in a split second if I need him to hear me!! Don't be rude..lol. Go into a dark quiet private bedroom..lay down..tell everyone prior to going in not to wake you if you fall asleep. Stay there for a few days sleeping as much as possible (Dr can help with proper meds). RESET! Become a member of any Facebook group you can find that is CVSers .

1.Reach out and join the wonderful support groups on Facebook. There are so many people out there just like you living with this illness.
2. You will come to a point where you will grieve the person you were before diagnosis... this is completely healthy, as long as you talk about it to someone.
3. There is no cure for cyclic vomiting syndrome, however there are medications that can help control and ease the symptoms .
4. Listen to your body and don't be afraid to call an ambulance , don't leave it too late.

Get help earlier. I would wait days to go to the hospital. It gets harder to get an IV in a vein that's not at all hydrated.

Explain your disease to friend, family and your medical professionals.

Research and join support groups. It helps to have knowledgeable people to help you.

Always have an advocate. It's hard to think and absorb while you are in an episode.

First, be relieved that you know what you have! I struggled for months not knowing and thinking I was going crazy! Although it really stinks to be diagnosed with CVS, remember that it is a manageable condition and is ordinarily not life-threatening.This IS a condition you can live with, just be prepared in advance for your episodes by scheduling things appropriately (if you can) and making your "space" as conducive to getting better as possible. Educate your friends and family about CVS and let them know what kind of support you will need during episodes and after. Emotional support meant more to me than almost anything else when I was in an episode. Find that support wherever you can, whether it's friends or family staying with you or just being available by phone or join online support groups. It's amazing how much better I felt after I joined CVS groups on Facebook. It was very comforting and calming to see that I was not the only one. Last bit of advice - LET PEOPLE HELP YOU! If help is offered, in any form, please take it. Let those that care about you help! You're going to need all the help, support, and love you can get.

Find a good compassionate doctor who understands or is willing to learn about the condition and explore treatment options. Be sure to have a neurologist, primary care doctor, GI specialist, and a therapist.

Don't let yourself get overwhelmed.
Keep your friends and family close.
Everything will be okay. Just keep swimming
Work closely with your doctor.
It can take a little while to find out your personal successful treatment.

Don´t stop looking for working medications and learn and watch for your triggers. Enough sleep. Avoid stress, also positive excitement can be a trigger

Try to not live in anticipation of the next episide

I would share with them a list of foods that might be avoided, a list of meds and home remedies that my be tried. I would tell them to try to find both a good doctor and a good hospital that arenwellbeducated and familiar with CVS. I would also encourage them to share their diagnoses with close friends and family members around them. And tell them that I’m here for them if they need me ( and I’m not in the middle of an episode myself ! Lol)