Help us to help more people
  2. Cystinosis
  3. Stories
Story about Cystinosis .

Mum of 2 girls with cystinosis

Jul 28, 2017

By: Hélène

Cystinosis
My 2 daughters Alix ( born in 2016) and Helga (born in 2017) have cystinosis. They are threated in Robert Debré  (Paris) and are both with Cystagon. 

 

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

Cystinosis and depression

Cystinosis and depression
Cystinosis jobs

Can people with Cystinosis work? What kind of work can they perform?
Cystinosis is also known as...

Cystinosis synonyms
Cystinosis sports

Is it advisable to do exercise when affected by Cystinosis? Which acti...
Cystinosis life expectancy

What is the life expectancy of someone with Cystinosis?
Couple and Cystinosis

Is it easy to find a partner and/or maintain relationship when you hav...
Cystinosis symptoms

Which are the symptoms of Cystinosis?
Natural treatment of Cystinosis

Is there any natural treatment for Cystinosis?