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Which advice would you give to someone who has just been diagnosed with Cystinosis?
See some advice from people with experience in Cystinosis to people who have just been diagnosed with Cystinosis
Be strong, don't get depressed. Listen to advice from others in the know. Take your meds, go to your appointments and learn everything you can about your disease. Most important, get involved with other people who have Cystinosis like you. You are special, you are a Cystinosis Warrior!
Posted Feb 27, 2017 by Todd 1200
