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Living with Cystinosis. How to live with Cystinosis?

Can you be happy living with Cystinosis? What do you have to do to be happy with Cystinosis? Living with Cystinosis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Cystinosis

Living with Cystinosis
1 answer
You can be very happy living life with this disease. Compliance is key. A strong support system is key. This is not a death sentence. Today with the research of the foundation's of the CRN and many other Cystinosis organizations life can be good. It's all up to the patients.
Posted Feb 27, 2017 by Todd 1200

Living with Cystinosis

Cystinosis life expectancy

What is the life expectancy of someone with Cystinosis?

3 answers
Celebrities with Cystinosis

Celebrities with Cystinosis

2 answers
Is Cystinosis hereditary?

Is Cystinosis hereditary?

2 answers
Is Cystinosis contagious?

Is Cystinosis contagious?

2 answers
ICD9 and ICD10 codes of Cystinosis

ICD10 code of Cystinosis and ICD9 code

2 answers
Natural treatment of Cystinosis

Is there any natural treatment for Cystinosis?

1 answer
Cystinosis diet

Cystinosis diet. Is there a diet which improves the quality of life of peop...

2 answers
History of Cystinosis

What is the history of Cystinosis?

1 answer

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Stories of Cystinosis

CYSTINOSIS STORIES
Cystinosis stories
CYSTINOSIS
My name is Denis and I'm father to two amazing kids with cystinosis aged 7 and 4.
Cystinosis stories
A SIBLINGS STORY
My brother Andrew, 12, was diagnosed with Cystinosis in 2005 when he was one years old. my family is from Calgary, Alberta, Canada.  I am involved with the Cystinosis Research Foundation community (USA), C.A.R.E. - Cystinosis Awareness Research Eff...
Cystinosis stories
KIMBERLY 10 YEARS - CYSTINOSI GIRL
Kim is my doughter...she's 10 and she was diagnostic when was 10 months old.... we Live in a small village between the Alps, near the boundaries of Austria and Slovenia. She is a very strong girl, she is a fighter.....  She is not very tall and now...
Cystinosis stories
JANA'S STORY
My 12 year old son Caleb has cystinosis. 
Cystinosis stories
MUM OF 2 GIRLS WITH CYSTINOSIS
My 2 daughters Alix ( born in 2016) and Helga (born in 2017) have cystinosis. They are threated in Robert Debré  (Paris) and are both with Cystagon.   

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