Living with Dermatomyositis and Polymyositis

Dermatomyositis and polymyositis are chronic autoimmune diseases that affect the muscles and skin. Living with these conditions can be challenging, but with proper management and support, individuals can lead fulfilling lives. Here are some strategies to help navigate life with dermatomyositis and polymyositis:

1. Seek Medical Care and Follow Treatment Plans

It is crucial to consult with a healthcare professional who specializes in autoimmune diseases, such as a rheumatologist or dermatologist. They can provide an accurate diagnosis, prescribe appropriate medications, and develop a personalized treatment plan. Adhering to the prescribed treatment plan is essential for managing symptoms and preventing disease progression.

2. Maintain a Healthy Lifestyle

Adopting a healthy lifestyle can help manage symptoms and improve overall well-being:

• Exercise regularly: Engage in low-impact exercises, such as walking, swimming, or gentle stretching, to maintain muscle strength and flexibility.


• Eat a balanced diet: Consume a variety of nutrient-rich foods, including fruits, vegetables, whole grains, lean proteins, and healthy fats, to support overall health and immune function.


• Get enough rest: Prioritize quality sleep and listen to your body's needs by taking breaks and pacing activities throughout the day.


• Avoid triggers: Identify and avoid factors that worsen symptoms, such as excessive sun exposure, stress, or certain medications.

3. Manage Symptoms

Living with dermatomyositis and polymyositis often involves dealing with various symptoms. Here are some strategies to manage common symptoms:

• Pain and inflammation: Over-the-counter pain relievers or prescribed medications can help alleviate pain and reduce inflammation. Applying heat or cold packs may also provide relief.


• Skin issues: Protect your skin from the sun using sunscreen, wear protective clothing, and moisturize regularly to manage skin rashes and sensitivity.


• Muscle weakness: Use assistive devices, such as canes or braces, to support mobility and conserve energy. Physical or occupational therapy may also be beneficial in improving muscle strength and function.


• Emotional well-being: Living with a chronic illness can be emotionally challenging. Seek support from loved ones, join support groups, or consider therapy to cope with the emotional impact of the conditions.

4. Stay Informed and Advocate for Yourself

Educate yourself about dermatomyositis and polymyositis to better understand your condition and treatment options. Stay updated on the latest research and advancements in managing these diseases. Advocate for yourself by actively participating in your healthcare decisions, asking questions, and seeking second opinions if needed.

5. Build a Support Network

Living with dermatomyositis and polymyositis can be challenging, both physically and emotionally. Surround yourself with a supportive network of family, friends, and healthcare professionals who can provide encouragement, understanding, and assistance when needed.

6. Monitor and Communicate with Your Healthcare Team

Regularly monitor your symptoms and keep track of any changes or flare-ups. Openly communicate with your healthcare team about your experiences, concerns, and any new symptoms that arise. This will help them adjust your treatment plan accordingly and provide the best possible care.

Remember, everyone's experience with dermatomyositis and polymyositis is unique. It is essential to work closely with your healthcare team to develop a personalized approach to managing your condition. With proper care, support, and self-care, it is possible to live a fulfilling life while managing these chronic autoimmune diseases.