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What is the prevalence of Doose Syndrome?

How many people does Doose Syndrome affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Doose Syndrome

Doose Syndrome is a rare form of epilepsy that typically begins in early childhood. It accounts for approximately 1-2% of childhood epilepsy cases. The prevalence of Doose Syndrome is estimated to be around 1 in 10,000 to 1 in 20,000 individuals. It is characterized by the onset of multiple types of seizures, including myoclonic, atonic, and generalized tonic-clonic seizures. The exact cause of Doose Syndrome is unknown, but it is believed to have a genetic component. Early diagnosis and appropriate treatment are crucial in managing this condition and improving the quality of life for affected individuals.



Doose Syndrome, also known as Myoclonic-Astatic Epilepsy (MAE), is a rare form of epilepsy that typically begins in early childhood. It is characterized by a combination of different seizure types, including myoclonic seizures (brief muscle jerks) and atonic seizures (sudden loss of muscle tone).


The prevalence of Doose Syndrome is estimated to be around 1 in 10,000 to 1 in 20,000 individuals. While it is considered a rare condition, it is important to note that prevalence rates may vary across different populations and regions.


Doose Syndrome is more commonly diagnosed in boys than girls, with a male-to-female ratio of approximately 2:1. The exact cause of the syndrome is unknown, but it is believed to have a genetic component in some cases.


Managing Doose Syndrome can be challenging, as it often does not respond well to traditional anti-seizure medications. However, some individuals may experience improvement or even remission of seizures over time. Treatment options may include a combination of medications, dietary therapies, and other supportive measures.


Early diagnosis and appropriate management are crucial in optimizing the quality of life for individuals with Doose Syndrome and their families.


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Prevalence of Doose Syndrome

Doose Syndrome life expectancy

What is the life expectancy of someone with Doose Syndrome?

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Celebrities with Doose Syndrome

Celebrities with Doose Syndrome

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Is Doose Syndrome hereditary?

Is Doose Syndrome hereditary?

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Is Doose Syndrome contagious?

Is Doose Syndrome contagious?

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Natural treatment of Doose Syndrome

Is there any natural treatment for Doose Syndrome?

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ICD9 and ICD10 codes of Doose Syndrome

ICD10 code of Doose Syndrome and ICD9 code

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Living with Doose Syndrome

Living with Doose Syndrome. How to live with Doose Syndrome?

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Doose Syndrome diet

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World map of Doose Syndrome

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Stories of Doose Syndrome

DOOSE SYNDROME STORIES
Doose Syndrome stories
-febrile TC presentation @ 2 yrs 4 mths, normal development up to diagnosis, no family hx of epilepsy, brother w febrile seizures as baby, resolved - 5 types: TC, myos, absence, myo astatic, tonics  (in order of squantity) - myos absence and myo a...
Doose Syndrome stories
My son was diagnosed when he was two years old, October 2007. Have failed 18 meds, VNS, keto diet and cbd.
Doose Syndrome stories
Started having seizures at 4 yrs old was diagnosed with Doose at 4 1/2. Zarotin has been the only medication that has helped after trying pretty much every other medication. 
Doose Syndrome stories
River is my 6 year old daughter who was diagnosed with myoclonic Astatic epilepsy or Doose syndrome. She was diagnosed epileptic in the beginning of 2013 and then was diagnosed with Doose syndrome in the middle of 2014. We recognize the myoclonic act...
Doose Syndrome stories
My son had his first seizure at 2.5yrs and we are just over 2 years on this hell road! On keto and 3 AEDs.

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