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Dravet Syndrome
Advice
Advice of Dravet Syndrome
Has the typical mutation at the SCN1A but is more likely to be described as GEFS+.
by Scott Morehouse
Avoiding overstimulation
by Nicholas
VNS
by Manuela
Vagus Nerve Stimulator reduced seizure lengths and recovery times.
by Anna
crisis need diazepam rescue in 90% of the times
by Cristy
Making sure my medications are adjusted right
by Lillyonha
Having a Neuro who really knows Dravet
by Dawson
Having a Neuro who really knows Dravet
by Dawson
Symptoms of ADHD and Autism are real
by BFullam
Best status seizurecontrol with fenobarbital,topimax and nitrazepam
by Elliot E
Gastrostomy
by Isla smith
Meu filho
by Barbara Matias
knowledge
by Madolynn E.
Pleurer pleurer et prier
by Vanessa
MMJ has helped me so much
by Jayce
neurologist
by Samara
Basketball!
by Kai Kristian Rudnick
mis terapias
by Abigail gomez
The healthcare in my hometown.
by Mari Beate Guttorm
My mum which always fights for me
by Nele Schlegel
Quality of life balance between Meds and seizure free
by Brooke
The doctors don't know everything
by Shayne
If possible use benzodiazepines only as rescue meds, not a daily AED
by Luella Johnson
Finding our specialist has been huge.
by Sabrina
Im am older
by Lu von "Teufelchens Welt - das Dravet-Syndrom"
The Ketogenic Diet: http://www.dominik-aurelio.de/Kochbuch.html
by Dominik Aurelio
Have faith
by
La médication de mon neurologue
by Charlotte Veilleux
Topimax is the best drug for seizure control so far (for us).
by Scott Morehouse
Empatica Epi Watch
by Manuela
Taking CBD along with three AEDs.
by Anna
2.8 yrs with seizures once a month, sometimes once weekly.
by Cristy
Spending time with my family and doing my favorite things like playing with toys and learning my ABCs and coloring
by Lillyonha
Ketogenic Diet
by Dawson
Ketogenic Diet
by Dawson
We have great seizure control for now
by BFullam
Prednisolone saved my life under obtundation status in May 17’
by Elliot E
Ketogenic diet
by Isla smith
Ciência
by Barbara Matias
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