Has the typical mutation at the SCN1A but is more likely to be described as GEFS+.
Avoiding overstimulation
Vagus Nerve Stimulator reduced seizure lengths and recovery times.
crisis need diazepam rescue in 90% of the times
Making sure my medications are adjusted right
Having a Neuro who really knows Dravet
Having a Neuro who really knows Dravet
Symptoms of ADHD and Autism are real
Best status seizurecontrol with fenobarbital,topimax and nitrazepam
Gastrostomy
Meu filho
knowledge
Pleurer pleurer et prier
MMJ has helped me so much
neurologist
mis terapias
The healthcare in my hometown.
My mum which always fights for me
Quality of life balance between Meds and seizure free
The doctors don't know everything
If possible use benzodiazepines only as rescue meds, not a daily AED
Finding our specialist has been huge.
The Ketogenic Diet: http://www.dominik-aurelio.de/Kochbuch.html
Have faith
La médication de mon neurologue
Topimax is the best drug for seizure control so far (for us).
Empatica Epi Watch
Taking CBD along with three AEDs.
2.8 yrs with seizures once a month, sometimes once weekly.
Spending time with my family and doing my favorite things like playing with toys and learning my ABCs and coloring
Ketogenic Diet
Ketogenic Diet
We have great seizure control for now
Prednisolone saved my life under obtundation status in May 17’
Ketogenic diet