Story about Dravet Syndrome .

Hope for Daunte.

Dec 2, 2

By:


Shortly after my sons 6 month shots he had a very high fever and had his 1st tc seizure. Then he kept having them despite not having a fever until after the seizure had already occurred. It confused all of our doctors and they categorized them as febrile seizures until his second birthday when he went into a four day status seizure which landed us in Boston children's hospital. They ran every test imaginable to try to find out why . They put my son on 2 different meds before we left the hospital and gave us the diagnosis weeks later. His seizures have mutated into several different types and despite being on several meds he is still not completely seizure free.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Dravet Syndrome prognosis

Dravet Syndrome prognosis

Dravet Syndrome life expectancy

What is the life expectancy of someone with Dravet Syndrome?

Latest progress of Dravet Syndrome

What are the latest advances in Dravet Syndrome?

Dravet Syndrome is also known as...

Dravet Syndrome synonyms

Dravet Syndrome diet

Dravet Syndrome diet. Is there a diet which improves the quality of li...

Living with Dravet Syndrome

Living with Dravet Syndrome. How to live with Dravet Syndrome?

Dravet Syndrome diagnosis

How is Dravet Syndrome diagnosed?

Dravet Syndrome treatments

What are the best treatments for Dravet Syndrome?