Story about Dupuytrens Contracture .

Lumps,lumps and more lumps.

May 18, 2016


In 2010 I felt a small pea sized lump In the arch of my left foot. I didn't think too much about it until I saw my GP for my annual check up in 2011.  It wasn't painful,just annoying. My GP suggested that I have a CT scan. So off I went and I still wasn't too worried. After the scan the young lady said 'I know what that is, you have Planter fasciitis..google it.' So I went home and did my home work. Deep tissue massage was recommended. So I got the massage oil out and gave it a good hard rub.....bad move!! Within a week it had grown to the size of a marble and was becoming very painful. 

After seeing a few different DRs in 2012 I was referred to Dr Richard Boyle at RPA hospital in Sydney. By this time I had two more lumps in my right foot and my left foot nodule had grown to the size of a golf ball. I was in extreme pain and could not walk very far without my trusty wheel chair. He was quite adamant that surgery was not the way to go but Radio Therapy was the new treatment. A week later he did a biopsy on my left foot and the results were conclusive. 

I was then referred to Dr Elias Nasser at Wollongong Cancer Clinic to start my RT. Dr Nasser had never treated anyone with Ledderhose but was more than happy to do the research and accept me as his patient.

what an amazing Dr and now a great friend. He went above and beyond to learn all he could to treat me.I had 5 days each foot 30gy then a 5 week break and then another 5 days  

unfortunately I had a very bad reaction to the RT  very swollen red, hot,blistered feet and the pain was excruciating. Luckily Dr Nasser got the pain clinic to asses me and was prescribed very strong pain meds and steroids  

fast forward to to 2015 after 2 1/2 years and no more pain or discomfort. BANG..my right foot decided that it wanted to start up again.So back to my RT oncologist for another round of RT. I unfortunately had the same reaction.

its been 8 mths now and my ledderhose is stable. But wait... I have now been diagnosed with Arthritus in both my feet  would I do this all again? In a blink.I no longer need a wheel chair all the time and feel that I have come such a long way. I can't run or dance but I have now found other activities like swimming and craft that are just as enjoyable at 54. I must admit that I'm forever checking my hands for any signs of Dupytrines disease..I don't want this sister to grab me by the hand.

I can't thank my Drs and the support from family and friends along with the amazing support groups on Facebook for getting through this challenge.you are all amazing

 

 

 

 

 

 

 

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