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Falling off my toes

While I still worked as a ballet dancer and later a ballet teacher (stopped performing at age 35) my dysautonomia symptoms were easily managed, but durubf times when I did not dance they were much more pronounced.  At 32 I had a heart attack due to arrhythmia and I stopped dancing, tool office work and steadily it became worse.  as it turns out the dysautonomia was only a symptom of Multiple System Atrophy a progressive terminal neurodegenerative illness, diagnosed in 2000 and given 2-6 years I have exceeded that expiry date, don't believe everything they tell you/

https://scontent-sea1-1.xx.fbcdn.net/hphotos-xlf1/v/t1.0-0/p206x206/11129899_10153172924046067_1326750796129995299_n.jpg?oh=b1694294548cb61bfdc503378cf9f4fd&oe=5768DFEC

Hi Aletta,  Nice to see you are still keeping on after all these years.  So much is still unknown about MSA and there are so many other disorders that mimic the symptoms. A better way to diagnose MSA and similar disorders is needed so desperately.  

Posted 8 years ago by Pam Bower

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