- Dystonia Disorder
- Interviews
Dan's interview
How did all start?
When I was very young. I had leg and arm pain.
Do you already have a diagnosis? How long did it take you to get it?
It took my entire life to get diagnosed. I was diagnosed when I was 58.
For what medical specialties have you been treated? What has been the most useful specialty for your?
My pain doctor.
What has been the most useful thing for you so far?
The internet. That is what gave me the info that doctors didn't. Now I see a great Neurologist.
What have been your biggest difficulties?
Dealing with my family. Most don't believe me because I have always complained about health problems. Strange that only my friends and doctors believes me.
How has your social and family environment reacted? Have your social or family relationships changed?
Only the Christian family members are hard to deal with so I try not to talk to them.
What things have you stopped doing?
I had to stop working and can't do anything of value.
What do you think about the future?
The future sucks. I will dye in 2 to 3 years.
What would you like to do if you didn’t have your condition?
That a dump cruel question is this.
If you had to describe your life in a sentence, what would it be?
I really sucks
Finally, what advice would you give to a person in a similar situation?
Do what ever you need to do to have peace and joy in your life.
