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Which advice would you give to someone who has just been diagnosed with Dystonia Disorder?

See some advice from people with experience in Dystonia Disorder to people who have just been diagnosed with Dystonia Disorder

Dystonia Disorder advice
3 answers
If anyone ask about your dystonia. Here's what you should say telling your story everyone needs to be educated Dystonia. You can do anything !!!! Do not let Dystonia get in your way. Or bring you down. Make your dreams come true no matter how Dystonia may be

Posted Oct 1, 2017 by Allison 2400
I would have them told to call me at 410-486-2525, at which time I would explain all about dystonia, my program and then answer their questions.

Posted Apr 16, 2019 by Steve 3549
Translated from spanish Improve translation
Calm down because you can learn how to cope with everything in life, that is not the end of the world and little by little they will be accepting. Seeking to help the people that want to and try to be positive and try to continue doing their life, within their possibilities

Posted May 4, 2017 by Marta Marquez 890

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Stories of Dystonia Disorder

DYSTONIA DISORDER STORIES
Dystonia Disorder stories
It might not seem like it, but this is the short version of my remission from Dystonia :-p For me the answer was Functional Neurology and supplements.   No mainstream doctors or drugs required, though I did go down that path without success and in...
Dystonia Disorder stories
.too long to tell. started with fibromyalgia, anemia, bobble head, swallowing difficulties, bowel issues, chronic pain. i had 3 sessions in ICUfor pneumonis  with broncial washes every day, IGIV 6 days in a row , 3 weeks, then 3 weeks rehab, 6 month...
Dystonia Disorder stories
I had gone YEARS not properly diagnosed.  I have probaby had this since birth, as most of my pics from growing up, my head is always tilted and I remember pain.  It was when my oldest son turned 5 (he's now 22) that I started looking for answers wh...
Dystonia Disorder stories
Eu sou psicólogo e coordenador de um Centro de Atenção Psicossocial. Tenho distonia focal - câimbra do escritor - desde a infancia. Apesar da dificuldade para usar as mãos em tarefas específicas, eu estudei e tenho uma profissão. Apesar de min...
Dystonia Disorder stories
Diagnosed with CD july, 2015.  Trying to get botox worked out.  2nd injection and it hasn't worked yet.  Going to try a higher dosage next time.  Trying to stay optimistic, fairly new to this and very uncertain how things will progress.  This is...

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Dystonia Disorder forum

DYSTONIA DISORDER FORUM
Dystonia Disorder forum
Since I found a nutritional supplement that gave me relief for my eyelid dystonia, (Blepharospam), I have been helping many others from all over the world. How can I get the world or to more sufferers without their thinking I am not the honest and si...
Dystonia Disorder forum
anyone with blepthaspasm as part of the Dystonia conditions 

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