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Ebsteins Anomaly stories
BUENOS DIAS, SOY UN NIÑO MUY ACTIVO CON ANOMALIA DE EBSTEIN. VIVO EN BOGOTÁ, Y HASTA EL MOMENTO NO HE TENIDO NINGÚN SINTOMA. ESTOY EN CHEQUEOS CADA 6 MESES.
SI TIENEN ALGÚN AMIGO, FAMILIAR O UDTED MISMO TIENE ANOM...
Views: 592 Feb 21, 2018, 9:39 AM by SERGIO
Echo at 20 weeks gestation showed EA. Did well at birth and as a baby. By 8 yo need ohs due to enlargement of RA and tiredness from regurgitation. Surgery at UVA unsuccessful. ☺️ 4 years later ohs at Children's in Boston. Cone and maz...
Views: 575 Dec 14, 2015, 8:36 PM by Nathan
born with severe EA and no surgical intervention to date. Suffered stroke in 2012from uncloused PFO; Helex repair to prevent future strokes. Fortunate enough to have survived this long; daughter born in 2014 with same Ebstein severity (no surgery to ...
Views: 567 Jan 14, 2016, 11:16 PM by Megan
Diagnosed before birth, valve repair, ASD repair, VSD repair and atrial plication at 4 days old.
Views: 528 Jan 4, 2016, 11:15 AM by Dylan
I lived for 46 years without knowing that I had Ebstein's Anomaly. When I was little my Dr heard a sound that he diagnosed as Mitral Valve Prolaspe. He put it in my chart but never ordered an echo to verify this thoughts. It wasnt until I had several...
Views: 522 Feb 23, 2016, 10:09 AM by Lynne
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