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Ectodermal Dysplasia
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Top questions
Question 8
8
Which advice would you give to someone who has just been diagnosed with Ectodermal Dysplasia?
See some advice from people with experience in Ectodermal Dysplasia to people who have just been diagnosed with Ectodermal Dysplasia
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Mit anderen Betroffenen austauschen und Mitglied in einer der Selbsthilfegruppen werden. Es gibt in nahezu jedem Land eine Selbsthilfegruppe.
Die deutsche Gruppe: http://www.ektodermale-dysplasie.de
Posted Feb 9, 2018 by
[email protected]
2291
Translated from portuguese
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That he must get wet a lot and drink a lot of water. Take care of the temperature of the body.
Posted May 25, 2017 by
Elanne
1050
Ectodermal Dysplasia advice
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2 answers
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Stories of Ectodermal Dysplasia
ECTODERMAL DYSPLASIA STORIES
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BY
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My son is born in 2000 and he was diagnosed HED when he was 9 months old. Pointy teeth, no hair, no sweating. He his now 15 and doing fine with who he is. He know he is love for who he is, and he is a sweet, loving, caring, gamer guy! Carol...
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COOL DUDE'S OMA
my 4 year old grandson has h.e.d.
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7/11/16, 11:37 PM by
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