8

Which advice would you give to someone who has just been diagnosed with Ectodermal Dysplasia?

See some advice from people with experience in Ectodermal Dysplasia to people who have just been diagnosed with Ectodermal Dysplasia

Ectodermal Dysplasia advice
2 answers
Mit anderen Betroffenen austauschen und Mitglied in einer der Selbsthilfegruppen werden. Es gibt in nahezu jedem Land eine Selbsthilfegruppe.

Die deutsche Gruppe: http://www.ektodermale-dysplasie.de

Posted Feb 9, 2018 by [email protected] 2291
Translated from portuguese Improve translation
That he must get wet a lot and drink a lot of water. Take care of the temperature of the body.

Posted May 25, 2017 by Elanne 1050

Ectodermal Dysplasia advice

Ectodermal Dysplasia life expectancy

What is the life expectancy of someone with Ectodermal Dysplasia?

4 answers
Celebrities with Ectodermal Dysplasia

Celebrities with Ectodermal Dysplasia

2 answers
Is Ectodermal Dysplasia hereditary?

Is Ectodermal Dysplasia hereditary?

3 answers
Is Ectodermal Dysplasia contagious?

Is Ectodermal Dysplasia contagious?

3 answers
ICD9 and ICD10 codes of Ectodermal Dysplasia

ICD10 code of Ectodermal Dysplasia and ICD9 code

3 answers
Natural treatment of Ectodermal Dysplasia

Is there any natural treatment for Ectodermal Dysplasia?

2 answers
Living with Ectodermal Dysplasia

Living with Ectodermal Dysplasia. How to live with Ectodermal Dysplasia?

3 answers
Ectodermal Dysplasia diet

Ectodermal Dysplasia diet. Is there a diet which improves the quality of li...

4 answers

World map of Ectodermal Dysplasia

Find people with Ectodermal Dysplasia through the map. Connect with them and share experiences. Join the Ectodermal Dysplasia community.

Stories of Ectodermal Dysplasia

ECTODERMAL DYSPLASIA STORIES
Ectodermal Dysplasia stories
I have a type of ED called EEC
Ectodermal Dysplasia stories
I'm the mother of 7 year old twin boys wit ectodermal dysplasia 
Ectodermal Dysplasia stories
My son is born in 2000 and he was diagnosed HED when he was 9 months old.  Pointy teeth, no hair, no sweating.  He his now 15 and doing fine with who he is. He know he is love for who he is, and he is a sweet, loving, caring, gamer guy!   Carol...
Ectodermal Dysplasia stories
my 4 year old grandson has h.e.d.

Tell your story and help others

Tell my story

Ectodermal Dysplasia forum

ECTODERMAL DYSPLASIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map