At the young age of two, Rilee was diagnosed with Aplastic Anemia. Getting that news was pretty devastating and led to needing a bone marrow transplant in 2003. Little did we know, this began a long journey of many questions and few answers. In 2008,...
Lathyn was born May 16 2014 and was diagnosed with Dyskeratosis congenital and passed away 09/25/2015...This has taken a toll on his mother,father sisters and us the grandparents and family. We want to continue to in his memory to hold fund rai...
My son, Lathyn, was born May 2014, was diagnosed with Dyskeratosis Congenita July 2015 and passed away from it September 2015. His symptoms started at around 6 months which was a developmental delay, so he had an MRI done that showed he had vanishing...
1 people with Dyskeratosis congenita have taken the SF36 survey. Mean of Dyskeratosis congenita is 730 points (20 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
