Help us to help more people
  2. Erdheim Chester Disease
  3. Advice
Pain meds
by Donna Dunlap-Kida
Soaking in the tub with hot water helps bone pain.
by Maria Halvorson
Dabrafenib to treat ECD
by Stephen
My faith in Jesus Christ
by Charles
Zelboraf has changed my moms life for the better
by Evie Berger
Support of family and friends who treat me with the irreverence they always have.
by Shayne
5 months of support from ECD alliance
by Dan
metadona
by Mariana
Strong family support system
by Donna Dunlap-Kida
Physiotheraphy for treatment of stiffness
by Stephen
My loving wife who suffered ECD so patiently and positively throughout the 10+ years she suffered ECD
by Charles
Why my mom??
by Evie Berger
Medical team that realise they do not have the answers but are interested enough to constantly seek new ideas.
by Shayne
My family love
by Dan
massagens e compressas quentes
by Mariana
Updated info
by Donna Dunlap-Kida
The ECDGA
by Stephen
My Sons and a few close friends who were able to share the load of care.
by Charles
I want a cute -there is none and it's so sad
by Evie Berger
Even when it's difficult continuing to exercise and living life as normally as possible.
by Shayne
My Dr JULIO HAJDENBERG who's searching for the right medication
by Dan
praticar nataçao
by Mariana