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What is the life expectancy of someone with Erdheim Chester Disease?

Life expectancy of people with Erdheim Chester Disease and recent progresses and researches in Erdheim Chester Disease

Erdheim Chester Disease life expectancy
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Translated from portuguese Improve translation
Since the expert of the first symptoms the hope of life is a life of 19 months to 5 years, however I read several articles scientific report of some cases of people who have lived up to 30 years with the disease. The life expectancy is directly related to the aggressiveness of the disease and the organs and systems that affect them.

Posted Nov 22, 2017 by Mariana 1000

Erdheim Chester Disease life expectancy

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The cancer in you And my Orthopedic Doctor said; “YOU HAVE CANCER IN YOUR BONES – LEGS, ARMS AND POSSIBLY IN YOUR BRAINS AND ORGANS. I CANNO TREAT YOU. Cancer? Are you telling me I have cancer? How could this be possible?” These were th...

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