World map of Erythromelalgia


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Erythromelalgia stories


MY JOURNEY WITH EM


My symptoms first started in October of 2010.  I began to investigate my symptoms on the internet.  After searching I came upon Erythromelalgia and ALL my symptoms matched.  I then began my search for a doctor who could and would help ...

Views: 985 by Tollie Godwin

LIVING WITH A DISABLING CONDITION


I started getting stange burning in my feet and calves about a year ago.  Went to many doctors and had all the test.  None could diagnose me.  Said probably samll fiber neuropathy even thought the skin biopsy was negagive.  Stumbl...

Views: 793 by Colleen Horton

JACQUES ST JEAN'S STORY


A lot of medication since 5 years Nothing help  

Views: 717 by Jacques st Jean

LIVE WITH IT


I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. ...

Views: 692 by Virginia basham

DIAGNOSIS


I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

Views: 621 Dec 17, 2015, 8:05 AM by Ellen van der Veen

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Erythromelalgia forum


EYTHROMELGIA


Are there any eythromelgia 'experts' in the uk?

Views: 402 Jun 28, 2016, 3:49 AM by wen

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