Six months of Interferon (Roferon-A) has alleviated most symptoms
My faith and hope in the Lord
Hydrea has kept counts down
5yrs of Jakifi
Haven't found anything yet!
Three months on Hydrea have brought my platelet level down from over a thousand to just over 400
I am a Mom of 4 children
30 minutes exercise daily
Have had high platelet count for many years but no medic paid any attention to it. Had surgery and broken bones and never had a problem. My recent doctor noticed it after 2 years with him and sent me to the Hematologist/oncologist and he put me on Hydrea
Staying Positive
Taking my medication before bed
Starting my treatment of Hydroxyurea and aspirin stopped my headaches.
Time with the Family
Eating clean. Reducing sugar intake.
Lots of water
Getting back to my normal routine
reducing hydroxyurea
Le repos quand il est nécessaire et sans culpabilité
I retired so not working has helped, mostly because of not having to get up early.
Being around people you know makes it easier to deal with!
I have the most wonderful and supportive husband imaginable.
remaining positive
changing from hydroxy to Jakafi wiped out the majority of brain fog in about 6 months
Positive attitude
Support from our children
A multi vitamin helps give me a boost
My husband standing by my side through it all
Family supportive
My son is my will to keep fighting this
On aspirin but have decided not to take anything else yet
Healthy eating
I drink much more than I used to do as hydration seems to prevent headaches that I was experiencing when first on medication
I get upset when I can't participate in life due to fatigue
Cutting out sugar and refined foods
Hydrea and baby aspirin caused soft bumps to pop out on my hands and wrists. He took me off the meds.
Exercise and eating healthy
Putting symptoms in perspective
I was very frighten and depressed upon diagnosis; now I am happy I’m aware and on routine care.
My New 3 & 1 on the way, Grandchildren
Working 32 hr work week rather than 40
Trying to not dwell on my diagnosis
Getting past the first 10 days post-diagnosis and realizing I still had a life ahead of me
eating more red meat, including liver
Éviter de penser que je suis malade
I cut out a very stressful “volunteer” job, which eliminated my worse stress and my sudden confusion improved a great deal.
I find when i over think things my symptoms get worse!
My adopted shelter pets 3 cats and a new little Terrier mix I named “Foundher”