Which advice would you give to someone who has just been diagnosed with Evans Syndrome?

See some advice from people with experience in Evans Syndrome to people who have just been diagnosed with Evans Syndrome

1 answer

Breathe. Don't panic. Read up on everything you can. Find good suppports - I'm part of a wonderful ITP group for my country (my initial disgnosis). They've been very supportive. Be willing to ask for help and support. Regardless of your illness, live your life purposefully and meaningfully. Accept that you'll probably experience a whole cascade of difficult emotions and make room for them.
I think I've coped with this thing as well as anyone could. I'm very lucky in a way because my career is all about helping people to cope with pretty awful things and so I knew what I could do that might help me through.

Posted Mar 4, 2017 by Ceara 1000

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16 YR OLD FIGHTING MYSTERY AUTOIMMUNE ILLNESS

My daughter has been fighting her autoimmune illness since she was a baby. At 4 years of age she was finally hospitalized and the doctor's began researching for answers. She was an enigma to our team of doctor's. Her illness is similar to Evan's ...

742

12/13/15, 2:37 PM by Lari

MY EVAN'S SYNDROME WAR

I was diagnosed with Evan's syndrome a little over a year ago . I have been in the hospital with high fevers and bad infections. Had a lot of antibiotics . Also can't take steroids because they cause sever manic episodes . I have had rituxan infusion...

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5/25/17, 2:53 PM by Kelsey

'S STORY

Diagnosed with glandular fever in 2010. After having blood test the doctor found that I had very low blood platelets. I was put into hospital and diagnosed with lupus (4 out of 7 signs) and later with Evans Syndrome. On medium to high doses o...

708

2/26/16, 7:47 PM by

MEETING THE WAY I WOULD LIKELY DIE

Something was wrong. My hair was changing. My skin was changing. I just didn’t feel good. I caught every cold that walked through the door, and once they came to visit, they were very hard to shake. Yes...something was wrong. My doctor sent me ...

493

11/11/19, 8:55 PM by Moon

Which advice would you give to someone who has just been diagnosed with Evans Syndrome?

See some advice from people with experience in Evans Syndrome to people who have just been diagnosed with Evans Syndrome

Evans Syndrome advice

What is the life expectancy of someone with Evans Syndrome?

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Celebrities with Evans Syndrome

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Is Evans Syndrome hereditary?

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ICD10 code of Evans Syndrome and ICD9 code

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