World map of Factor VII Deficiency View more
  2. Factor VII Deficiency
  3. Forum
  4. Top questions
  5. Question 8
8

Which advice would you give to someone who has just been diagnosed with Factor VII Deficiency?

See some advice from people with experience in Factor VII Deficiency to people who have just been diagnosed with Factor VII Deficiency

Factor VII Deficiency advice
1 answer
It is strongly encouraged to join a local bleeding disorder chapter (National Hemophilia Foundation - http://www.hemophilia.org -- or Hemophilia Federation of America - http://www.hemophiliafed.org/), or if dealing with a pediatric case, working with national nonprofits for support (Gabby's Love Foundation - http://www.GabbysLove.org). These nonprofits can be a strong foundation to start with. Research online may yield limited, or mixed results; however, working with these bleeding disorder nonprofits can provide a ton of useful data, advocacy, and often times support in several ways.
Posted Apr 11, 2017 by Gabby's Love Foundation 1150

Factor VII Deficiency advice

Factor VII Deficiency life expectancy

What is the life expectancy of someone with Factor VII Deficiency?

3 answers
Celebrities with Factor VII Deficiency

Celebrities with Factor VII Deficiency

1 answer
Is Factor VII Deficiency hereditary?

Is Factor VII Deficiency hereditary?

2 answers
Is Factor VII Deficiency contagious?

Is Factor VII Deficiency contagious?

2 answers
ICD9 and ICD10 codes of Factor VII Deficiency

ICD10 code of Factor VII Deficiency and ICD9 code

2 answers
Natural treatment of Factor VII Deficiency

Is there any natural treatment for Factor VII Deficiency?
Living with Factor VII Deficiency

Living with Factor VII Deficiency. How to live with Factor VII Deficiency?

2 answers
Factor VII Deficiency diet

Factor VII Deficiency diet. Is there a diet which improves the quality of l...

2 answers

World map of Factor VII Deficiency

Find people with Factor VII Deficiency through the map. Connect with them and share experiences. Join the Factor VII Deficiency community.
View map

Stories of Factor VII Deficiency

FACTOR VII DEFICIENCY STORIES
Factor VII Deficiency stories
SURPRISE!
My daughter, Rio (7 years old), was diagnosed with a Factor VII deficiency. It was discovered during pre-op blood work, which showed only her PT level and INR were prolonged. At this time we do not know if it was inherited or acquired. She is asympto...
Factor VII Deficiency stories
GABBY'S STORY
HI! MY NAME IS GABBY!  IN 2016, I WAS DIAGNOSED WITH AN EXTREMELY RARE BLOOD DISORDER KNOWN AS FACTOR VII DEFICIENCY. ONLY 1 OF 200 CASES KNOWN WORLDWIDE! THIS IS A LIFELONG ILLNESS THAT CAUSES JOINTS IN MY BODY TO BLEED AND PREVENTS MY BLOOD FROM ...
Factor VII Deficiency stories
DEVI'S STORY
Hi everyone, myself Devi Ramasamy from South India & I'm severe factor 7 deficient. I have bleeding right from my birth after severe bleeding in my belly button. With lot & lot of bleeding episodes in gum, nose, joints, muscles, GI, hematuria (bleedi...
Factor VII Deficiency stories
DEFICIENCIA CONGENITA FACTOR VII
hola soy martina, de argentina paciente con deficiencia congenita de FVII , uso profilaxis dos veces por semana porque presento sangrados espontaneos, nariz, moretones, hemartos pre rotulianos ,menorragia... junto a mi familia buscamos toda la inform...

Tell your story and help others

Tell my story

Factor VII Deficiency forum

FACTOR VII DEFICIENCY FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map